Home NetWorks Home-Based Mechanical Ventilation and Neuromuscular Disease

Home-Based Mechanical Ventilation and Neuromuscular Disease

Description

To promote knowledge and education of clinicians, caregivers, and patients on the long-term respiratory care of individuals with neuromuscular conditions and individuals requiring home-based mechanical ventilation to maximize their quality of life and home-based living.


What's New?

Margaret Pfrommer Endowed Memorial Lecture in Home-based Mechanical Ventilation
 
This award was established in 1999 by Dr. Eveline Faure and Dr. Allen I. Goldberg, honors their lifelong colleague and friend, Margaret Pfrommer, a polio survivor and patient advocate. It is awarded to a clinician, ventilator-dependent professional, or advocate, who has advanced mechanical ventilation and fostered partnerships between physicians and patients. 
 
The Margaret Pfrommer Endowed Memorial Lecture in Home-based Mechanical Ventilation is generously supported by International Ventilator Users Network of Post-Polio Health International and the CHEST Foundation.

2020
Peter Gay, MD, MS, FCCP
Navigating to Home NIV Nirvana: What Would Margaret Do? 
  • This session provides a historical perspective on home non-invasive ventilation and how it has shaped where we are today while referencing Margaret Pfrommer's legacy.
2019
Howard Panitch, MD, FCCP 
  • This session discusses several aspects of home mechanical ventilation where adult care has informed approaches to pediatric care and vice versa.
2018
Douglas McKim, MD, FCCP
Saving Lives: One Ventilator at a Time - HMV in 2018 and Beyond
  • This session honors Margaret Pfrommer’s memory by including a brief historical perspective on HMV, Dr. McKim's personal introduction to HMV through patient stories as well as topics such as HMV in Canada, continuous NIV, LVR and MI-E research, weaning the ‘unweanable’ and suggestions about the future of HMV.

Check out the these ALS articles by our own steering committee member, Dr. Jason Ackrivo:


Chair

Michelle Cao, DO, FCCP
Liaison: CHEST 2021 Scientific Program Committee

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Vice-Chair

Sherri Katz, MD, FCCP

Steering Committee

Jason Ackrivo, MD
Jeanette Brown, MD, PhD
John Coleman, MD
Sheila Kun, BSN, MS, FCCP
Won Lee, MD
Karin Provost, DO, PhD, FCCP
Hemant Sawnani, MD
Bernardo Selim, MD, FCCP
Amen Sergew, MD

Fellow-in-Training Member

Justin Fiala, MD
Meredith Greer, MD

Consultants

Allen Goldberg, MD, MBA, Master FCCP
Brian Tiburzi, MA
Lisa Wolfe, MD, FCCP

Ex Officio Member

Howard Panitch, MD, FCCP

Staff Liaison

Katlyn Froslan