Home-Based Mechanical Ventilation and Neuromuscular Disease
Description
To promote knowledge and education of clinicians, caregivers, and patients on the long-term respiratory care of individuals with neuromuscular conditions and individuals requiring home-based mechanical ventilation to maximize their quality of life and home-based living.
What's New?
Read our latest News From Your NetWork.
Read our latest article in CHEST Physician.
View the latest #CHESTHomeMV conversation on Twitter.
As a NetWork member, you're welcome to join your NetWork Steering Committee calls. If interested in joining an upcoming call, please contact Katlyn Froslan, and she will be happy to share access information.
2020 Home-Based Mechanical Ventilation and Neuromuscular Disease NetWork Steering Committee Call Dates:
- Friday, February 14: 2:00-3:00 PM CT
- Friday, May 8: 2:00-3:00 PM CT
- Friday, September 11: 2:00-3:00 PM CT
Margaret Pfrommer Endowed Memorial Lecture in Home-based Mechanical Ventilation
This award was established in 1999 by Dr. Eveline Faure and Dr. Allen I. Goldberg, honors their lifelong colleague and friend, Margaret Pfrommer, a polio survivor and patient advocate. It is awarded to a clinician, ventilator-dependent professional, or advocate, who has advanced mechanical ventilation and fostered partnerships between physicians and patients.
The Margaret Pfrommer Endowed Memorial Lecture in Home-based Mechanical Ventilation is generously supported by International Ventilator Users Network of Post-Polio Health International and the CHEST Foundation.
2019
Howard Panitch, MD, FCCP
- This session discusses several aspects of home mechanical ventilation where adult care has informed approaches to pediatric care and vice versa.
2018
Douglas McKim, MD, FCCP
- This session honors Margaret Pfrommer’s memory by including a brief historical perspective on HMV, Dr. McKim's personal introduction to HMV through patient stories as well as topics such as HMV in Canada, continuous NIV, LVR and MI-E research, weaning the ‘unweanable’ and suggestions about the future of HMV.
2017
Audrey King, MA
Check out the these ALS articles by our own steering committee member, Dr. Jason Ackrivo:
Upcoming Scheduled Calls
As a NetWork member, you're welcome to join your NetWork Steering Committee calls. If you are interested in joining an upcoming call, please contact Katlyn Froslan. She will be happy to share access information.
- Friday, May 8 from 2-3 pm CT
- Friday, September 11 from 2-3 pm CT
Chair
Michelle Cao, DO, FCCP
Liaison: CHEST 2020 Scientific Program Committee
CONTACT THE CHAIR
Vice-Chair
Sherri Katz, MD, FCCP
Steering Committee
Jason Ackrivo, MD
Jeanette Brown, MD, PhD
John Coleman, MD
Jacob Collen, MD, FCCP
Julie Hanley, NP
Sheila Kun, BSN, MS, FCCP
Won Lee, MD
Karin Provost, DO, PhD, FCCP
Amen Sergew, MD
Fellow-in-Training Member
Justin Fiala, MD
Consultants
Allen Goldberg, MD, MBA, Master FCCP
Joan Headley, MS, BS
Lisa Wolfe, MD, FCCP
Ex Officio Member
Howard Panitch, MD, FCCP
Staff Liaison
Katlyn Froslan